World Lupus Federation is inviting input from Jamaican Lupus Warriors and Caregivers, through participation in this year’s World Lupus Federation patient survey which is seeking to explore access to lupus care. The survey went live on May 15 and is due to close on April 3.

Lupus Foundation of Jamaica is a member of the World Lupus Federation, and international community of Lupus Advocacy groups that collaborate together for maximum impact in the interest of Lupus Warriors across the world, usually culminating with the joint observance of World Lupus Day on May 10 each year. 

Mike Donnelly, Vice President, Communications, Lupus Foundation of America, World Lupus Federation said the Federation is particularly interested in gaining participation from the Jamaican Lupus community through the Lupus Foundation of Jamaica, which is considered one of the most active of their groups.  "The information collected from the survey will help us learn more about the barriers to accessing lupus care and better advocate for and support patient needs."  

This 10-minute survey is an important way for the Federation to understand access to care among those with lupus and raise awareness worldwide. The term "access to care," refers to a person's ability to see a healthcare professional with knowledge of lupus treatment in a reasonable amount of time. 

This survey is intended for people diagnosed with lupus or those who are caregivers of those diagnosed with lupus. All responses to this survey are anonymous.

The survey opened on March 15 and will close on April 3, 2023.  Persons living with Lupus or their Caregivers may take the survey by  clicking the following link:

 - https://bit.ly/WLDsurvey23

After analysing the survey results the Federation will provide key messages and social media sharables that we can use in future communications including World Lupus Day to increase global awareness of lupus among the general public, policymakers and media.