News

Step ⿡: Share this video: https://www.youtube.com/watch?v=ZkEr6ZswOw0

(Go ahead, we’ll wait… )

Now that you’ve shared it—welcome back! Today, we’re excited to launch our Learn Lupus Campaign as part of the global #GivingTuesday movement. This initiative aims to raise awareness, empower lives, and inspire hope for the over 6,000 Jamaicans living with lupus.

Here’s how we’re making a difference:

➡ Raising Awareness: Educating communities to reduce stigma and encourage early diagnosis.

➡ Supporting Lupus Warriors: Offering counseling, support groups, and essential resources.

➡ Advocating for Better Care: Striving for improved access to healthcare, vital medications, and funding for lupus patients.

Want to make a bigger impact?

Donate now: https://lupusfoundationjamaica.org/Donations

Step ⿢: Share the video again—this time with your family, friends, and networks both locally and in the diaspora. Let’s spread the word and make generosity go viral!

Together, through the Learn Lupus Campaign, we can empower lives, inspire hope, and build a brighter future for lupus warriors across Jamaica!

✨ Thank you for being part of this amazing journey. Your support means the world to us.

Contact us: executivedirector@lupusfoundationjamaica.org

Call us: (876) 778-3892 | (876) 510-1288

Follow us on social media for updates and more ways to get involved:

• Facebook: https://www.facebook.com/Lupusfoundationjamaica

• Instagram: https://www.instagram.com/lupusfoundationjamaica

• Twitter: https://twitter.com/LupusJa

• YouTube: https://www.youtube.com/channel/UC8QXQ4P5z5yP5G5G5G5G5G5G

• LinkedIn: https://www.linkedin.com/company/lupus-foundation-of-jamaica

#GivingTuesday #LearnLupus #KickstartHope #LupusFoundationJa #EmpowerLives #InspireHope

Kingston, Jamaica – December 2024 – The Lupus Foundation of Jamaica (LFJ) is excited to announce its participation in Giving Tuesday as part of a new initiative to popularize Giving Tuesday in Jamaica. With the launch of the “LearnLupus” Campaign, LFJ aims to raise awareness about lupus, provide educational resources, and support those living with lupus across the island. Through this campaign, LFJ encourages Jamaicans to come together on Giving Tuesday (December 3, 2024) to contribute to the cause of lupus education and patient care. The campaign will extend beyond December 3, where we are encouraging giving every Tuesday throughout December.

Giving Tuesday, celebrated globally on the first Tuesday after Thanksgiving, is a day dedicated to generosity and giving. Black Friday has taken off in Jamaica and Cyber Monday is catching on. We believe the same is possible for Giving Tuesday. (Tishauna Mullings, Executive Director). In this spirit, LFJ is embracing this global movement by raising awareness and funds to support the LearnLupus Campaign. This initiative will provide vital support to individuals affected by lupus and empower them with the knowledge and tools they need to manage the disease.

How You Can Support the LearnLupus Campaign This Giving Tuesday:

LFJ invites everyone to participate in the Giving Tuesday movement by getting involved in the LearnLupus Campaign in the following ways:

1. Donate: Your donation will directly support the LearnLupus Campaign which helps provide education, resources, and financial assistance for individuals living with lupus at lupusfoundationjamaica.org
   
2. Volunteer: Share your time, skills, or expertise to support LFJ’s programs or help raise awareness about lupus in your community.
3. Spread the Word: On Giving Tuesday and every Tuesday thereafter, share your support for the campaign on social media with the hashtag #LearnLupus and #GivingTuesdayJA. Encourage others to donate, volunteer, or learn more about lupus.

Why Giving Tuesday Matters for the LearnLupus Campaign

Lupus affects approximately 6,000 people in Jamaica, and many of them face challenges not only with their health but also in accessing the resources and support they need. This Giving Tuesday, LFJ’s goal is to raise $1,000,000 as a kickstart fund to enhance the LearnLupus Campaign, which will provide:

●       Educational Resources and Workshops: Information on lupus symptoms, treatments, and how to manage the disease.

●       Community Outreach: Hosting events, webinars, and Q&A sessions to raise awareness and empower both patients and healthcare providers.

Dr. Desiree Tulloch-Reid, President of the Lupus Foundation of Jamaica, shared, “At the Lupus Foundation of Jamaica, we see the challenges of lupus warriors up close. This day of global giving gives us the chance to make a meaningful impact in the lives of those living with lupus, not only through financial support but also through education and awareness. This center will be a lifeline.”

Key Events in Lupus Awareness:

LFJ has consistently worked to raise lupus awareness and provide education and support. Throughout Lupus Awareness Month in last October, LFJ organized impactful events including:

●       Lupus Awareness Luncheon: A gathering of lupus warriors, supporters and healthcare professionals to celebrate last standing and volunteers as well as family and friends of lupus warriors who have passed away..

●       35th Annual Lupus Symposium: Bringing together local and international experts to discuss Neuropsychiatric Lupus and the importance of early detection.

●       Laps for Lupus Awareness: An annual lapathon event where the community comes together to raise funds and show support for lupus warriors.

The LearnLupus Campaign is the next phase of LFJ’s ongoing commitment to raising awareness, fostering education, and building a strong community of support for individuals affected by lupus in Jamaica.

Fitness and Wellness: A Key Part of Lupus Management

At LFJ, we continue to stress the importance of fitness for lupus warriors. Regular, low-impact physical activity can help manage common symptoms like joint pain, fatigue, and stiffness, while promoting overall health and mental well-being. The Laps for Lupus Awareness event is just one example of how movement and community can support lupus warriors in Jamaica.

How to Get Involved

This Giving Tuesday, help us raise awareness and resources for lupus warriors in Jamaica by supporting the LearnLupus Campaign. Whether through donations, volunteering, or spreading the word, your participation will make a significant impact on the lives of individuals affected by lupus.

For more information about the LearnLupus Campaign, or to donate, please contact:
Lupus Foundation of Jamaica Unit 29, Winchester Business Centre, 15 Hope Road, Kingston 10
Phone: 876-778-3892 | 876-510-1288
Email: info@lupusfoundationjamaica.org (Executive Director: director@lupusfoundationjamaica.org)
Website: www.lupusfoundationjamaica.org

Follow LFJ on Facebook, Instagram, YouTube, and LinkedIn for updates and information on how you can contribute.

HASHTAGS:

#LearnLupus

#KickstartHope

#LupusFoundationJa

#GiveEveryTuesday

#GivingTuesday

About the Lupus Foundation of Jamaica: Founded in 1984, the Lupus Foundation of Jamaica is a volunteer-run organization dedicated to providing education, advocacy, and patient-centered support to individuals living with lupus. LFJ’s mission is to improve the quality of life for lupus patients through information, resources, and research, while also working to raise awareness about the disease both locally and internationally.

Kingston, Jamaica – 12 November 2024 – The Lupus Foundation of Jamaica (LFJ) has received a generous donation of J$2 million from National Bakery, marking a significant step in the Foundation’s mission to support individuals affected by lupus across Jamaica. The ceremonial handover took place at the National Bakery office, where the donation was presented by Mr. Gary “Butch” Hendrickson, Chairman and CEO of Continental Baking Company and head of the Council of Voluntary Social Services (CVSS).

Mr Hendrickson shared with the group about his own journey with lupus, specifically discoid lupus, which affects the skin, as well as another serious autoimmune disorder, dermatomyositis, which bears many similarities. Mr. Hendrickson's personal journey has connected him to LFJ’s mission and fuels his commitment to increase awareness and enhance care for lupus patients.

Accepting the donation on behalf of the Foundation were Finance Director Pete Smith, President Dr. Desiree Tulloch-Reid, and newly appointed Executive Director Tishauna Mullings. They were joined by members of National Bakery’s staff, including representativesfrom the Public Relations team. From left to right:

Amanda Hendrickson, Continental Baking Company Limited Gary “Butch” Hendrickson, Chairman and CEO, Continental Baking Company Limited

Ms. Shakira Robinson, Chief Operating Officer, Continental Baking Company Limited

Mrs. Nicole Marshall-Walker, Chief Human Resource Officer, Continental Baking Company

Limited

Dr. Desiree Tulloch-Reid - President, Lupus Foundation of Jamaica

Tishauna Mullings, JP - Executive Director, Lupus Foundation of Jamaica

Pete Smith - Finance Director, Lupus Foundation of Jamaica

The Lupus Foundation of Jamaica (LFJ) delegation was warmly received by the Honourable Prime  Minister Andrew Holness at the Office of the Prime Minister on Tuesday, October 29, 2024. The meeting, a key highlight of the Foundation's 40th Anniversary and Lupus Awareness Month activities, celebrated the collaboration between the government and the LFJ in advancing care and support for Jamaicans affected by lupus, a serious autoimmune disorder affecting an estimated 6,000 persons.

As the meeting commenced, LFJ President Dr. Desiree Tulloch-Reid introduced the delegation and which included “lupus warriors” Eaton McKoy, Anthoney Smith and Shanae Robinson, founding member Rosemary Nethersole and board members Cedric McDonald and Sybil McLean. She expressed gratitude for the government’s significant contributions to lupus care over the years, including the provision of free critical medications, the inclusion of lupus in the National Health Fund (NHF) individual benefits programme – now benefitting over 2000 persons, expanded rheumatology services in the public sector, and a recently granted annual subvention to support the Foundation's work.

“We are deeply grateful for the government’s recognition of the challenges faced by those living with lupus and its commitment to addressing not only healthcare access but also broader social determinants of health,” Dr. Tulloch-Reid remarked.

The Prime Minister reflected on a personal interaction that had inspired his advocacy for lupus care, recounting a conversation with a young woman whose journey with lupus and the financial burden of her care moved him to act. “The costs are extremely high to fund this care—I have seen the figures. But this is why we have to grow the economy, so we can afford to support the most vulnerable in our society,” the Prime Minister said.

Dr. Tulloch-Reid shared insights into the disease’s significant impact, particularly on young women in their most productive years, the wide implications at both an individual and societal level, and the promise of innovative treatments like biologic drugs. She also highlighted some of LFJ’s programmes, including public awareness campaigns, medical professional education, support groups, counselling,  and initiatives like the immune diagnostics programme and training of peer support volunteers.

Plans for a patient-led lupus registry and efforts to facilitate access to advanced treatments through clinical trials participation were also shared. These efforts, she noted, complement the government’s contributions and aim to improve patient outcomes and reduce the long-term healthcare burden by enhancing treatment options and survival rates as well as quality of life for persons living with lupus.

The meeting concluded with a presentation by lupus warrior Ms. Shanae Robinson, who handed over a framed statement of appreciation to the Prime Minister on behalf of the Foundation. The Prime Minister reaffirmed his support for lupus awareness and treatment initiatives, commending the LFJ’s dedication to improving lives through education, advocacy, and research.

The activity marked a significant moment in the Foundation’s history and 40th Anniversary celebrations and other Lupus Awareness Month activities, including an Awards Luncheon on Oct 31 as well as a free Lupus Symposium on Nov 3. The public is encouraged to contact the Foundation to participate in these activities, access information and support services and to support the Foundation’s efforts by donating, volunteering or membership.

About the Lupus Foundation of Jamaica Lupus Foundation of Jamaica (LFJ) is a volunteer-driven, member-based charitable organization founded in 1984. Dedicated to improving the lives of persons affected by lupus, the Foundation provides a range of services including public education, patient support programmes, advocacy, and the promotion of patient-centred research.

For more information visit

www.lupusfoundationjamaica.org or contact info@lupusfoundationjamaica.org or 8767783892.

Lupus Foundation of Jamaica Hosts 35th Annual Lupus Symposium, Advancing Understanding and Care for Lupus in Jamaica

Kingston, Jamaica – November 6, 2024 – The Lupus Foundation of Jamaica (LFJ) held its 35th Annual Lupus Symposium, an impactful event drawing experts, patients, and advocates to explore lupus and its effects on the brain and nervous system. The symposium, held on November 3, 2024, at the University of the West Indies (UWI) Regional Headquarters, gathered local and international specialists to shed light on Neuropsychiatric Lupus, a complex aspect of lupus that can affect mental and neurological health.

The Foundation’s President, Dr. Desiree Tulloch-Reid, opened the event with remarks emphasizing the significance of the symposium as part of the LFJ’s 40-year legacy. “This year’s theme, ‘Making Connections: Brain & Beyond in Lupus,’ is a testament to our commitment to bridging knowledge and support for those affected by lupus,” Dr. Tulloch-Reid stated. She highlighted the Foundation’s dedication to empowering lives and inspiring hope through awareness, research, and advocacy.

Honoring LFJ Pioneers and Longtime Supporters
The symposium paid tribute to Dr. Karel De Ceulaer, LFJ’s longest-serving President and a pioneer in lupus research and advocacy in Jamaica. Known for his dedication to lupus patients and advancements in treatment, Dr. De Ceulaer’s contributions have laid a foundation for the work carried out today by LFJ.

Prof. E. Nigel Harris, former Vice-Chancellor of UWI and a rheumatologist, delivered the opening address. Prof Harris is well-known internationally in the field of Rheumatology, having gained prominence in his early career by describing and developing tests to detect Antiphospholipid syndrome, responsible for serious complications in many lupus patients, enabling their treatment or prevention. Reflecting on his early experiences in rheumatology including patient care and research in Jamaica, Prof. Harris spoke about the profound impact the Foundation has had on his career and expressed his gratitude for being able to support LFJ’s work over the years. Prof. Harris received a citation from the Foundation in recognition of his invaluable contributions to lupus care and support of LFJ’s mission.

Expert Insights on Neuropsychiatric Lupus
The keynote speaker, Dr. Zahi Touma of the University of Toronto, head of its Neurolupus Program, shared essential findings on Neuropsychiatric Lupus (NPSLE), noting that this aspect of lupus, though complex, is not rare. Affecting 14-75% of individuals with lupus, depending on diagnostic criteria, NPSLE encompasses a range of symptoms, including cognitive impairment, depression, anxiety, and, in some cases, seizures and stroke. Dr. Touma emphasized the importance of early detection, accurate diagnosis and prompt and appropriate treatment, as these neuropsychiatric symptoms can have severe impacts on quality of life and in some cases lead to organ damage or even threaten life.

Additional sessions featured presentations from Dr. Roger Roberts, who discussed the psychiatric evaluation and management of lupus patients, and Dr. Michele Lee-Lambert, who spoke on the neurological manifestations of lupus. Dr. Lee-Lambert expressed her support for the symposium, stating, “The more educated we are about lupus, the sooner we can diagnose and manage its complications, benefiting countless individuals and families across Jamaica.” 

Dr. Sharlene Jarrett, a clinical psychologist, titled “Perceptions and Possibilities: Role of Peer Support for Lupus Patients in Jamaica.” Dr. Jarrett emphasized that lupus impacts every aspect of a person’s life—medical, social, and psychological—and that peer support is an invaluable resource for addressing these interconnected challenges.  She explained that structured peer support programs could help address gaps in care by offering psychosocial and practical assistance. LFJ is developing a training curriculum for peer mentors, tailored to the Jamaican context, to equip them with the skills to provide meaningful guidance to fellow lupus patients.

Perspectives from Lupus Patients and Mental Health Panel Discussion
The symposium included a powerful short film, “Patient Perspectives,” featuring individuals living with lupus who shared their personal experiences with neuropsychiatric lupus and the mental health challenges they face. The film highlighted how support from the Foundation has positively impacted their journey, shedding light on the importance of community and understanding for those affected.

Following the film, a panel discussion on mental health in lupus explored the social and psychological aspects of living with the disease. Topics included the impact of neuropsychiatric lupus on quality of life, the importance of peer and family support, and available mental health resources. Experts on the panel discussed ways to address stigma and the challenges of accessing adequate mental health care for lupus patients in Jamaica.

Support and Sponsorship
The symposium was made possible through the support of major sponsors, including Platinum Sponsors National Health Fund and Indus Life Sciences, and Gold Sponsor Wisynco Group and others. Members of the public may view the Symposium and presentations on the Foundations YouTube channel and Facebook pages.  The public is also invited to visit the Foundation’s website and/or Help Centre for further information about the Foundation’s Programmes and Services, to become a member, volunteer or donate to the charity which is seeking funding to expand critical programmes. 

                 

About the Lupus Foundation of Jamaica
Established in 1984, the Lupus Foundation of Jamaica is a volunteer-run organization dedicated to supporting those affected by lupus through education, advocacy, and patient-centred support. The Foundation provides vital resources to patients, families, and healthcare professionals while promoting awareness and advancing research into lupus.

For more information, please contact:

Lupus Foundation of Jamaica
Unit 29, Winchester Business Centre, 15 Hope Road, Kingston 10
Phone: 876-778-3892
Email: info@lupusfoundationjamaica.org
Website: www.lupusfoundationjamaica.org

Stay connected on Facebook, YouTube, Instagram, and LinkedIn.

Lupus Foundation of Jamaica Marks 40 Years of Empowerment and Hope with Awards Luncheon Kingston, Jamaica: The Lupus Foundation of Jamaica celebrated a remarkable milestone on October 31, 2024, with an inspiring Awards Luncheon at the Jamaica Pegasus Hotel’s Talk of the Town. Held as part of Lupus Awareness Month, the event, themed “Empowering Lives, Inspiring Hope,” brought together supporters, honourees, and distinguished guests in a heartfelt tribute to the many who have devoted themselves to the lupus community.     Under the expert guidance of hosts Elaine Wint and Errol Lee, the afternoon was a thoughtful blend of reflection, celebration, and forward-looking resolve. Dr Desiree Tulloch-Reid, M.B.B.S., FACR, Consultant Rheumatologist and President of the Lupus Foundation, opened the proceedings with heartfelt gratitude, highlighting the unity, compassion, and steadfastness that have shaped the Foundation’s legacy. The event’s theme resonated as a call to continue building on these values for the future. Emily Elliott’s musical performance captivated the room, setting the tone for an uplifting address by Ms Minna Israel, C.D., B.Sc., M.B.A., L.L.D. (Honours), who recently received the Order of Distinction in the rank of Commander. Ms Israel, a staunch advocate of health equity, delivered reflections on resilience and the vital role of community in supporting those facing chronic illnesses like lupus. In a statement commemorating this milestone, Ms. Israel said “ celebrating the resilient, the strength and the hope in every individual affected by this condition. When I look around I see warriors and I love that term, warriors because that is indeed what you are”, the Foundation’s Executive Director underscored the need for collective support across the nation, saying, “As the Foundation moves into deeper and more concentrated advocacy in this modern world, we’ll need all hands on deck. We have over 6,000 people known to be diagnosed with lupus, a complex and challenging diagnosis. We need everyone across Jamaica to support us in enriching the lives of lupus warriors and honouring them, so their contributions to nation-building are not hindered by their struggle with lupus.” Her words offered a powerful call to action, inviting Jamaicans to be part of the journey towards empowerment and inclusivity. The Most Honourable Andrew Holness, ON, PC, MP, Prime Minister of Jamaica, extended his own message of support, commending the Foundation’s invaluable impact. “The Lupus Foundation of Jamaica has been a beacon of hope for those living with lupus, not only through support and counselling but by championing better access to healthcare and essential medications. Thanks to collaborations with the National Health Fund, nearly 2,000 Jamaicans now benefit from critical lupus subsidies, a testament to the impact that committed partnerships can achieve.” The Prime Minister’s words reflect the government’s ongoing dedication to supporting healthcare for lupus patients in Jamaica. Recognising Dedication and Service The afternoon’s most memorable moments came with the presentation of awards, as the Foundation honoured those whose contributions have helped it become a pillar of support for the lupus community in Jamaica: ·         Awards for Past Presidents: In recognition of their foundational leadership, Dr Stacy Davis and Dr.Tulloch-Reid were each presented with awards. ·         Special Citation: Dr. Karel DeCuellar received a special citation in gratitude for his invaluable service as a past president who has served the foundation for over nineteen years. ·         Ever-Ready Champions: The Ever-Ready Champion Award, which honours relentless commitment, was presented to Claudette Cunningham, Marjorie Allen, Novianna Allen, and Dr. Taneisha McGhie. Three of the Ever-ready Champions are from Montego Bay doing stellar work through support groups, monthly meetings and lupus awareness activities. ·         Citations for Founding Members: Founding members whose vision and dedication laid the groundwork for the Foundation’s success were honoured with citations. Posthumously honoured were Linda Gambrill, Beverley and Desmond Valentine, Blossom Watson, and Heather Lewis. Present to receive their citations were Rosemary Nethersole and Dr Winston Williams.         ·         Awarded for being Long-Serving Members and Volunteers (over 10 years): The enduring contributions of long-serving members and volunteers were recognised with plaques presented to Rev Verna Cassells, Anne-Marie Davis, Claudette Hobbins, Cedric McDonald, Sybil McLean, Rosemarie Nelson, Barbara and Orville Walker, Marcia Thompson, Patricia McLennon, Christendeen Douglas, Dr. Everton (John) Newman, Algernon O’Neil, and Marcia Henry.           Each honouree was celebrated for their dedication, commitment, and the personal sacrifices they have made to support the Foundation’s mission. Their work stands as a testament to the power of compassion and community in transforming lives. Broad Support from Leaders and Stakeholders In addition to the Prime Minister’s words of encouragement, the event received congratulatory messages from the Minister of Health and other prominent figures. Stakeholders such as the Council of Voluntary Social Services were also present, underscoring the widespread support for the Foundation’s work. The luncheon provided an opportunity for reflection, fellowship, and renewed commitment to supporting Jamaica’s lupus warriors. The Lupus Foundation of Jamaica’s 40th Anniversary Awards Luncheon was not only a celebration of its history but an inspiring affirmation of its promise to empower, advocate, and uplift in the years to come.                     For further information, please contact: Lupus Foundation of Jamaica Phone: +1 (876) 778-3892 Email: executivedirector@lupusfoundationjamaica.org Website: https://www.lupusfoundationjamaica.org/page-18090 End of Release About the Lupus Foundation of Jamaica: Founded in 1984, the Lupus Foundation of Jamaica is dedicated to improving the lives of those affected by lupus. Through awareness campaigns, educational programmes, and advocacy, the Foundation empowers individuals, families, and communities, inspiring hope locally and globally in the fight against lupus.

FOR IMMEDIATE RELEASE

Lupus Foundation of Jamaica Reflects on a Amazing Annual Laps for Lupus Awareness Event

Kingston, Jamaica – October 21, 2024 – The Lupus Foundation of Jamaica (LFJ) proudly celebrates the remarkable success of its annual Laps for Lupus Awareness event, held on Sunday, October 20, 2024, at Emancipation Park. Themed “Empowering Lives; Inspiring Hope,” this family-friendly lapathon drew over 300 participants in a heartfelt show of unity and support for persons living with lupus.

This signature event invited participants of all ages and fitness levels to walk, run, or stroll laps around the park, promoting community spirit, health, and wellness while raising much-needed awareness about lupus. Hosted by the engaging duo Shannon Dale-Reid and Daindra Harrison, the event delivered a full day of excitement, education, and inspiration.

Highlights of the Event

1. Fitness Meets Fun:

Participants got moving with high-energy workout sessions led by the renowned Kurt Dunn (Body by Kurt), including Zumba and yoga classes. The sessions encouraged physical activity as an essential element of overall wellness, particularly for those managing chronic illnesses like lupus.

2. Health & Wellness Hub:

Onsite health checks and wellness booths offered participants valuable tools to maintain a healthy lifestyle. Professionals provided information on lupus management, dietary tips, and mental health strategies, fostering an atmosphere of education and empowerment.

3. Entertainment and Engagement for All Ages:

Dalton 'Potcova' Spence kept the crowd entertained with games, music, and engaging activities, creating a lively and inclusive environment. Attendees were thrilled by the addition of sponsored giveaways and prizes, which brought a competitive edge to the day’s events.

4. Competitive Spirit on Display – 3K Lap Run Winners:

The highlight of the day for many was the 3K lap run, where participants demonstrated their athleticism and dedication to the cause.

Male Winners:

○ 1st Place: Oshae Hudson – 12:56.26

○ 2nd Place: Davian Nelson – 16:26.96

○ 3rd Place: Donald Brown – 16:53.20

5. Female Winners:

○ 1st Place: Tricia Shay – 20:05.76

○ 2nd Place: Tishauna Mullings – 22:56.45

   

   

Empowering Lives and Inspiring Hope

The event underscored the Foundation’s commitment to its mission of empowering lives and inspiring hope through increased awareness, education, and support for lupus patients and their families. Proceeds from the event will go toward enhancing public awareness and strengthening programs designed to assist those affected by lupus across Jamaica.

________________________________________

Community Impact and Gratitude

The Lupus Foundation of Jamaica extends its heartfelt gratitude to every participant, volunteer, and sponsor who contributed to the event’s success. From individual donors to corporate partners, their support enabled the Foundation to amplify its advocacy efforts and provide much-needed resources to lupus warriors.

“The overwhelming turnout and energy at this year’s event reflect the collective commitment of our community to stand with those living with lupus,” said the event organizers. “Together, we are making strides toward a future where lupus is better understood, and those affected are supported and empowered.”

Looking Ahead – Continued Advocacy

The LFJ invites the public to remain engaged in its year-round mission of raising awareness and providing critical resources for lupus patients. Donations remain open via the Foundation’s secure online platform: www.lupusfoundationjamaica.org/donations. Every contribution helps to sustain educational programs, patient assistance initiatives, and advocacy campaigns.

Join the Movement

For more information, please contact:

Lupus Foundation of Jamaica

Unit 29, Winchester Business Centre, 15 Hope Road, Kingston 10

Phone: 876-778-3892 | Email: info@lupusfoundationjamaica.org

Website: www.lupusfoundationjamaica.org

Stay connected on Facebook, Instagram, YouTube, and LinkedIn for updates on upcoming events and initiatives.

________________________________________

About the Lupus Foundation of Jamaica

Founded in 1984, the Lupus Foundation of Jamaica is a volunteer-driven charity dedicated to improving the lives of persons affected by lupus. Through education, advocacy, and patient support programs, the Foundation continues to empower lives and inspire hope, creating a brighter future for lupus warriors across the island.

END

Press Release 

Lupus Awareness Month 2024 Launches with Inspiration and Community Spirit

Kingston, Jamaica – October 9, 2024
The Lupus Foundation of Jamaica (LFJ) officially launched Lupus Awareness Month 2024 with two powerful events aimed at inspiring hope and fostering awareness. The launch began with an impactful evening gathering at Winchester Business Center, 15 Hope Road, followed by a deeply moving church service at Bethel Baptist Church on Sunday, October 13. These events drew together lupus patients, medical professionals, community leaders, and supporters to celebrate resilience and advocate for greater understanding and support for those living with lupus.

The theme for this year’s observance, "LFJ - Celebrating 40 Years: Empowering Lives, Inspiring Hope," underscores the Foundation’s unwavering commitment to uplifting lupus warriors through education, advocacy, and support. LFJ President Desiree Tulloch-Reid noted, “This month is a time for us to unite, educate, and advocate. Our goal is to empower patients and foster greater community understanding.”

The Lupus Awareness Month Launch Event
Held at the Winchester Business Center, the launch event was both inspiring and educational. Attended by over 40 participants, the evening featured poignant testimonials from lupus warriors Sheane Robinson and Easton McKoy, whose stories of courage and resilience deeply moved the audience. These testimonials were complemented by updates on LFJ’s ongoing initiatives and a thought-provoking keynote speech delivered by David Wan, LFJ Development Director and Managing Director of the Development Bank of Jamaica.

One of the highlights of the evening was a presentation on the state of lupus awareness and treatment in Jamaica, offering a sobering yet hopeful look at the progress and challenges faced by the lupus community. Adding to the event’s atmosphere of inspiration, Warren Harris delivered stirring musical performances that resonated with attendees. The night culminated with the unveiling of a calendar of activities planned for Lupus Awareness Month. These include community outreach programs, educational webinars, and the much-anticipated “Laps for Lupus Awareness” lapathon.

Lupus Awareness Month Church Service
The observance continued with a heartfelt church service at Bethel Baptist Church, designed to spiritually uplift and support individuals affected by lupus. The service featured special prayers for lupus warriors and their families, led by church leaders and community members. Attendees were inspired by a moving sermon delivered by Rev. Dr. Glenroy Lalor, who emphasized the power of compassion and collective action in addressing the challenges faced by lupus patients.

During the service, LFJ President Desiree Tulloch-Reid delivered greetings, reinforcing the Foundation’s dedication to advocacy and support. The event concluded with a special blessing for all attendees, leaving everyone present with a renewed sense of purpose and a call to action for continued community involvement and advocacy.

Planned Activities for Lupus Awareness Month
The Lupus Foundation of Jamaica has organized a robust lineup of events and initiatives to mark Lupus Awareness Month 2024. These activities are designed to educate, engage, and empower both lupus warriors and the broader community.

Highlights include:

●     Public Awareness Campaigns utilizing social media, media interviews, and special feature stories to amplify lupus awareness.

●     Community Engagement Initiatives that include outreach programs targeting workplaces, schools, and churches, encouraging inclusive discussions and support.

●     Signature Events such as the annual Laps for Lupus Awareness Lapathon, interactive educational programs tailored for patients and their families, and a 40th Anniversary Awards Luncheon celebrating decades of impact and advocacy.

●     Annual Lupus Symposium, which serves as a critical platform for medical professionals, patients, and the public to exchange knowledge and foster collaboration in lupus care and treatment.

Join the Movement
The Lupus Foundation of Jamaica invites all Jamaicans to participate in these impactful activities and help shine a light on lupus. Together, we can support those affected and work towards a future where lupus is better understood and effectively managed.

To stay informed and get involved, visit the Foundation’s website at https://lupusfoundationjamaica.org. You can also follow LFJ on social media for updates and educational content:

●     Facebook: @LupusFoundationJamaica

●     Instagram: @LupusFoundationJamaica

●     Twitter: @LupusJa

●     YouTube: Lupus Foundation of Jamaica

●     LinkedIn: Lupus Foundation of Jamaica

For inquiries, contact the Foundation at +1 (876) 778-3892 or via email at executivedirector@lupusfoundationjamaica.org.

About the Lupus Foundation of Jamaica
Since its establishment in 1984, the Lupus Foundation of Jamaica has been dedicated to improving the lives of lupus patients through advocacy, education, and support. As the leading voice for lupus awareness in Jamaica, LFJ continues to empower individuals and communities while advancing the fight against lupus on a global scale.

 

The Annual General Meeting of the Lupus Foundation of Jamaica is to be held on Wednesday July 31,2024 at 6 pm.  Nominations are invited for Board positions for the 2024/2025 administrative year.

• Eligibility for Nomination: Persons nominated will need to be active members the LFJ (up to AGM date) and receive two or more nominations from active members of the LFJ, to be considered.  In addition, nominees will be required to confirm that they accept nomination for the position, declare no conflicts of interest, and consent to other requirements for service, to be put forward as candidates. 
• Roles & Functions of Board Members: The Organisation Chart below illustrates the current Governance Structure including committees overseen by Directors.  A brief Description of Board positions is also provided to assist in appropriate selection of candidates.
• General Expectations: In general, Board Members should be prepared to commit 10 hours per month to their role, to attend monthly meetings and occasional Board retreats, provide reports as required, participate in strategic planning, participate in fundraising initiatives and serve on committees, in the interest of the LFJ.

• Submission of Nominations: The completed Nomination form may be submitted by mail, email, fax or hand-delivery and should be received by Wed July 24, 2024, 4 pm at Unit 29 Winchester Business Center,15 Hope Road, Kingston 10,  876-778-3892, or info@lupusfoundationjamaica.org.  Members are encouraged to confirm that their submitted nomination forms have been received and logged.

• Unfilled positions: For any vacancies that remain after the AGM, the members of the elected board (2024/25), once formed, are authorized to recruit and co-opt suitable persons for Board service.  Persons not elected or not available to take on full Board service may be co-opted to serve on the Committees listed below or other special committees.

Organisation Chart

Description of Board Positions:

Development Director: LFJ Ambassador with planning and marketing skills and able work with potential donors, sponsors and supporters. Able to dedicate 10 hours per month on a regular basis.

Financial Director: Strategist who will work closely with the president by taking a proactive stance in managing the organizations finances. Requires a donation of 10 hours per month.

Services Director:  An Administrative and HR wizard who can think on his/her feet and follow through with deliverables. Able to delegate and get results.

Programmes Director: An analyst and wordsmith able to gather statistics regarding the effectiveness of our current programs as well as managing the review and updating the organizations documents.

Board Member at-large: These are very valuable board members who form sub-committees, provide advice and pitch-in wherever there is a requirement.

Youth Member: Lupus Patient or family member, age 18 – 30: Good communicator and connector who can serve on committees and contribute to Youth engagement including Education, Communication & Membership

Please click here to download Nomination Forms and detailed instructions;  NOMINATION INFORMATION AGM_2024.pdf

On this special occasion of International Women's Day, as we celebrate the incredible achievements and enduring resilience of women around the world, we take this moment to thank and honor all our treasured women, including our Lupus Warriors, those who support them and the incredible persons who are part of our network of advocacy and support.

We who serve continue to be moved by the strength and courage displayed by our Lupus Warriors: Your journey with lupus is marked by countless challenges, yet you face them with unwavering grace and determination, inspiring us all with your resilience and your ability to navigate life's hurdles with courage and hope.  We are deeply honored to stand alongside you in your unwavering commitment to advocating for yourselves and others living with lupus. 

We also honor and recognize all our volunteers, donors and supporters that give of themselves and resources to support, encourage and advocate. Together, we form a community bound by compassion, support, understanding, solidarity and strength.

            

               

On this special day, may you be surrounded by love, peace, and the healing presence of God as you continue your journey with grace and resilience. May you find comfort in knowing that you are never alone, and may you always remember the profound impact of your presence in this world.

As we reflect on the significance of International Women's Day, let us reaffirm our commitment to serving and supporting one another, advocating tirelessly for greater awareness, understanding, and access to care. Together, we will continue to stand as a united force, driving positive change and paving the way for a brighter, more inclusive future for all.

With deepest gratitude and admiration,

Lupus Foundation of Jamaica

7 Barbados Avenue, Kingston 5

Phone:876-754-8458, Helpline: 876-778-3892

email: info@lupusfoundationjamaica.org || website: www.lupusfoundationofjamaica.org

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