News

  • 21 May 2021 10:07 AM | Anonymous


    Kingston, Jamaica, May 20, 2021 – For Immediate Release

    Thousands of Jamaicans continue to suffer the debilitating effects of Lupus, known medically as Systemic Lupus Erythematosus, a lifelong disorder of the immune system. The Lupus Foundation of Jamaica (LFJ) continues to support the fight against Lupus through its education programmes, advocacy and support to persons living with the disease. 

    Monday May 10, 2021 marked the annual observation of World Lupus Day and the kick-off of the 37-year-old Charity’s month-long drive to raise funds to support the fight against Lupus. The Foundation is inviting the support of the media, corporate Jamaica and the public at large to “Be Grand and Give a Gran’” in support of their mission.

    The autoimmune disease, which occurs at higher rates in Afro-Caribbean populations, is estimated to affect some 6000 Jamaicans. The goal of raising Four Million Dollars will guarantee more services for members, discovery and support of new patients, and support a variety of programmes essential to improve outcomes for persons with the disease. Each year the LFJ's public awareness campaigns for World Lupus Day (May 10) and Lupus Awareness Month (October) reach thousands of patients and members of the public via media interviews, virtual events, information sessions, social media platforms, displays at hospitals, clinics and parish libraries, as well as a “Put On Purple” initiative with distribution of purple ribbons and branded merchandise through the Organisation’s Lupus Learning Centre in New Kingston or via their online store geared at raising awareness and breaking down stigma concerning the illness.

    A member-based organisation, the LFJ's approximately 300 Members benefit from free psychological counselling, a member medical assistance fund, pharmacy discounts, a monthly e-newsletter, monthly support group meetings, WhatsApp support groups, hospital visits/support calls and access to guidance and information from health professionals. The LFJ also plays a leading role in Medical Professional Education on the subject through its Annual Lupus Symposium which brings international and local experts to present the cutting edge in Lupus care as well as address practical topics to improve the outcomes and quality of life of patients. The organization also continues to facilitate the donation of medical equipment to improve detection and treatment of lupus locally.

    The funding of the Foundation's annual budget of 9 million dollars is greatly dependent on volunteer labour and donations in cash or kind from small as well as corporate donors to subsidise membership dues and fund essential programmes, as well as sponsorships of events and programmes.

    The Foundation is therefore calling for volunteers and donations, as it seeks to mobilize response across the island, especially at a time when it faces both increased demand for services and funding challenges during the COVID19 pandemic.

    Lupus, known medically as Systemic Lupus Erythematosus, is a disorder of the immune system.  It causes the immune system to become over-reactive and produce antibodies that damage normal healthy cells and can be life-threatening.  While Lupus patients have an over-reactive immune system, in most cases, they are not able to effectively cope with common infections. This makes Lupus patients among the high-risk groups for contraction of Covid-19. 

    Donations to the registered charity are tax-deductible and can be made conveniently online on the LFJ website www.lupusfoundationjamaica.org/donations or to their account with banking details as follows: 

    Lupus Foundation of Jamaica 

    NATIONAL COMMERCIAL BANK   

    Branch Name: Knutsford   
    Branch Address: 1 Knutsford Blvd, Kingston 5, Jamaica
    Branch #: 33077     
    Bank Account #: 332062956   

    Currency: JMD   

    Account Type:  chequing /Current. 

    ABOUT LFJ

    The Lupus Foundation of Jamaica is a member-based, volunteer-run, charitable organization in operation since 1984. It aspires to improve the lives and outcomes of persons affected by lupus through a better awareness and deeper understanding of the disease.  Among its major activities are patient support and counselling, advocacy for access to care and promotion of research in the field.   

    To learn more about Lupus and LFJ programs and services, please visit the Lupus Foundation of Jamaica’s website: www.lupusfoundationjamaica.org , or their social media pages: https://www.instagram.com/lupusfoundationja/, https://www.facebook.com/Lupusfoundationjamaica/. 

    ###

    For more information about this topic, you may contact Desiree Tulloch-Reid at 1-876-574-4954 or rheumjamaica@ymail.com


  • 18 May 2021 1:44 PM | Anonymous


    Government and Media Join The Lupus Foundation of Jamaica in the call to increase knowledge and support for persons with Lupus.

    Kingston, Jamaica, May 17, 2021 

    Thousands of Jamaicans continue to suffer the debilitating effects of Lupus, known medically as Systemic Lupus Erythematosus, a lifelong disorder of the immune system. The Lupus Foundation of Jamaica continues the fight against Lupus through its education programmes, advocacy and support for persons living with the disease. 

    Monday May 10, 2021 marked the annual observation of World Lupus Day under the theme Make Lupus Visible. The Foundation joined with lupus groups across the world highlighting the need to increase awareness and knowledge of the disease, its wide impact and the need for earlier diagnosis, research, and access to treatment, health care and support for the many adults and children affected. The autoimmune condition which occurs at higher rates in Afro-Caribbean populations is estimated to affect some 6000 Jamaicans and an estimated 5 million persons worldwide.   

    Prime Minister Hon Andrew Holness, who in 2019 announced the addition of lupus to the list of conditions to receive medication subsidies from the National Health Fund, also joined in the call on May 10 through his Facebook page, endorsing the Foundation’s efforts and encouraging Jamaicans to support the initiative. “Let’s unite to spread awareness and increase understanding about Lupus.”

    In observing the Day, the Foundation sought to increase visibility and share knowledge about Lupus through print and broadcast media as well as social media platforms, displays at hospitals, clinics and parish libraries, and a “Put On Purple” initiative with the distribution of purple ribbons and branded merchandise through the Organisation’s Lupus Learning Centre in New Kingston and via their online store.

    The organisation also staged a free Virtual Event, Unmasking the Many Faces of Lupus, which opened with a video-recorded message from Dr the Hon Christopher Tufton, Minister of Health & Wellness, who applauded the Lupus Foundation of Jamaica for the work it has been doing.  “The Government has also played its part in supporting initiatives that improve the awareness and understanding of the disease…I look forward to our continuous collaboration and I implore all Jamaicans to join together and support persons living with the disease.”

    The Virtual Event, viewed live by over 500 persons on the Foundation’s YouTube and Facebook pages, was hosted by media practitioner Roxene Nickle of The Edge 105FM and featured several persons sharing their journeys with lupus, while medical specialists provided insights on the diagnosis and treatment of the disease.  Other highlights included vox pop interviews with members of the public - "word on the street about lupus", a virtual tour of the Foundation's Learning Centre and volunteers sharing their experiences working with the volunteer-run charity.

    Dr Desiree Tulloch-Reid, Consultant Rheumatologist and President of Lupus Foundation of Jamaica commented on the theme chosen. “Lupus and many autoimmune conditions are often referred to as “invisible illnesses” because there is often a lack of awareness and understanding both of the condition and the persons affected .“Lupus is also often referred to as ‘the Disease of Many Faces’ because of the various ways lupus can present itself. By “many faces” we also wanted to highlight the diversity of persons affected and their varied experiences during a lifelong journey with the illness”.

    May 10 also kicked off the 37-year-old Charity’s month-long drive to raise funds to support the fight against Lupus through its programmes to assist persons living with the disease. The Foundation is inviting the support of the media, corporate Jamaica and the public at large in its call for volunteers and donations, as it faces both increased demand for services and funding challenges during the covid19 pandemic.

    ABOUT LFJ

    Lupus, known medically as Systemic Lupus Erythematosus, is a disorder of the immune system.  It causes the immune system to become over-reactive and produce antibodies that damage normal healthy cells and can be life-threatening.  While Lupus patients have an over-reactive immune system, in most cases, they are not able to effectively cope with common infections.  This makes Lupus patients among the high-risk groups for contraction of Covid-19.

    The Lupus Foundation of Jamaica is a member-based, volunteer-run, non-profit organization in operation since 1984. It aspires to improve the lives and outcomes of persons affected by lupus through better awareness and a deeper understanding of the disease. Among its major activities are patient support and counselling, advocacy for access to care and promotion of research in the field.

    To learn more about Lupus and LFJ programs and services, please visit the Lupus Foundation of Jamaica’s website: www.lupusfoundationjamaica.org , or their social media pages: https://www.instagram.com/lupusfoundationja/https://www.facebook.com/Lupusfoundationjamaica/.



  • 12 May 2021 1:26 PM | Anonymous

    BARK DI TRUTE

    Posted by Vernon Lloyd Derby at 22:00 

    Dr. Winsome Beverley Christie
    President of the Pharmaceutical
    Society
     of Jamaica

    According to the Centre for Disease Control and Prevention (CDC, 2013, )Systemic lupus erythematosus (SLE), is the most common type of lupus. SLE is an autoimmune disease in which the immune system attacks its own tissues, causing widespread inflammation and tissue damage in the affected organs. It can affect the joints, skin, brain, lungs, kidneys, and blood vessels. There is no cure for lupus, but medical interventions and lifestyle changes can help control it.


    Brittney Taylor
    Assistant Secretary of the
    Pharmaceutical Society
    of Jamaica

     Prevalence of Systemic Lupus Erythematous in Blacks

    In recent years, SLE has been on radar as that autoimmune disease that is seen on the rise amongst both sexes of all ethnic groups. Interestingly, approximately ninety percent (90%) of SLE cases are seen in women. Of all the ethnic groups the rates appear to be higher inblack women. (Danchenko et al.,2006).

    An ethnic diverse study conducted in Michigan, concluded that the prevalence of SLE was 10-fold higher in females, with a 1 in 537 approximationsin black females. (Somers et al., 2014) Although, the prevalence appears to be higher in black women, the rates vary for black women living in different areas of the world.For example, reports from an early study done solely on black people in West Africa, proved the prevalence of SLE to be rare however, the ratesin said women living in America, the Caribbean and Europe was relatively high (Symmons DP, 1995).

    Kevar Bennett
     Secretary of the Pharmaceutical
    Society of Jamaica.

    Sang-Cheol B et al. highlighted in a review, that the prevalence of SLE progressively increased as blacks migrated from Africa to both North America and Europe suggesting that dietary and environmental contributions may have influenced the rates.  A common finding that was noted in various epidemiological studies done over the years;is that the prevalence of SLE in blacks tends to be higher than that observed in otherethnic groups.  (Lewis and Jawad, 2014). According to a study conducted by the University Hospital of the West IndiesDepartment of Medicine in 2008, a Lupus Registry was established to help with the analysis of the data and it was concluded that a total of 107 patients met the criteria for diagnosis of SLE at the referral centre, 96.3% of them female. Positive antinuclear antibodies[ANA ] (90.7%), arthritis (70.0%), malar rash (53.5%) and a positive dsDNA (40.1%) were the more frequent manifestations and diagnostic indices of the disease. Up to 41.7% of the SLE population suffered some form of complication.

    SLE AND COVID

    Several autoimmune rheumatic diseases such as systemic lupus erythematosus (SLE) result from immune-mediated inflammation and tissue damage caused by immune system dysregulation. As a result, patients with autoimmune rheumatic disease have been identified as a vulnerable population at risk for severe COVID-19 illness. Although a strong antiviral immune response is needed for viral clearance, hyperactive immunity has been linked to cytokine storm and tissue damage in COVID-19 patients . Both SLE and COVID-19 have been shown to manifest multi-organ complications of interstitial pneumonia, cytopenia, arthralgia, myocarditis, and hemophagocytic lymphohistiocytosis . Due to similarities in disease characteristics, treatment of patients with SLE may provide insights into development of therapeutic options for COVID-19.

    Lupus treatment

    The treatment modalities will focused on two types of lupus: Discoid lupus and Systemic Lupus Erythematosus.

    Discoid lupus is a skin problem that causes raised red areas (called "plaques") and scars on the skin. Discoid lupus can happen anywhere on the skin but usually happens on the upper body. The most common places for discoid lupus are the face, neck, scalp, and ears.

     Symptoms of discoid lupus: red, scaly plaques. These plaques tend to slowly expand at the edges and then heal. When they heal, they leave behind discolored skin and sunken scars. Discoid lupus on the scalp can cause hair loss.

    Sometimes, people with discoid lupus also have lupus in other parts of the body. This is called "systemic lupus." But most people with discoid lupus just have lupus in their skin.

    Treatment involves mainly topical applications but can include corticosteroids and medication similar to those used for the more generalized systemic lupus erythematosus.

    • Steroid medicines that come in ointments, creams, or gels – These steroid medicines reduce inflammation and help the skin heal. Examples include fluocinonide or clobetasol.
    • Medicines called calcineurin inhibitors that come in ointments or creams. Examples include pimecrolimus (brand name: Elidel) and tacrolimus (brand name: Protopic).
    • Steroid medicines that come as injections, are given locally into the portion of skin that is affected.          

    Sytemic lupus erythematosus treatment depends on symptoms and how the person is feeling. The goals of treatment include:

    • Ease your symptoms
    • Bring down inflammation
    • Prevent and relieve flares
    • Prevent organ damage and other health problems

    Pain and inflammation associated can be treated with non-prescription drugs such as

    • Acetaminophen
    • Aspirin
    • Ibuprofen
    • Naproxen

    Antimalarial drugs Pain Antimalarial Drugs such as

    hydroxychloroquine" or "chloroquine

    They might help with skin rashesmouth sores, and joint pain. They may also lower your chance of blood clots, which is a concern in some people with lupus.

    Antimalarial drugs protect against skin damage from ultraviolet rays in sunlight and may protect your body against organ damage linked to lupus.

    Corticosteroids

    These can be a pill form or IV, they work fast to ease swelling, warmth, and soreness in joints that’s caused by inflammation. They can also prevent long-term organ damage.

    Corticosteroids can have serious side effects like:

    You may also have weight gain, bloating, and mood changes. Your doctor will probably give you the lowest dose they can and taper it off if your symptoms go away for a time.

    Immunosuppressive drugs

    Like corticosteroids, these drugs curb your immune system, bring symptoms under control, and help prevent long-term organ damage. Your doctor may prescribe them if corticosteroids haven’t helped your symptoms.

    Common immunosuppressive drugs for lupus include:

    • Azathioprine (Imuran)
    • Cyclophosphamide (Cytoxan)
    • Methotrexate (Rheumatrex)

    In some cases, you may use immunosuppressive drugs along with corticosteroids. That way, you'll be taking a lower amount of each type of drug, reducing the possible side effects.

    With both types of drugs, you and your doctor need to weigh the risks of side effects against how well they ease your lupus symptoms.

    Side effects of immunosuppressive drugs

    Immunosuppressive can make it hard for your body to fight infections and raise your chances for some kinds of cancer. One particular immunosuppressive drug azathioprine may cause pancreatitis or a form of hepatitis. Cyclophosphamide may lead to bladder problems, hair loss, or fertility problems. Methotrexate can cause nausea, headaches, mouth sores, sun sensitivity, lung infections, and liver damage.

    Your doctor may also prescribe one or more of these types of drugs:

    • Anticoagulants. These thin your blood to prevent clots, a life-threatening lupus symptom.
    • Monoclonal antibodies. Belimumab (Benlysta) is the first drug created just to treat lupus. Given intravenously (in a vein) or subcutaneously (under your skin), it targets specific immune cells. It may help reduce your need for steroid treatment, but it hasn’t been tested thoroughly for the most severe forms of lupus. Rituxan (Rituximab) is another monoclonal antibody that can sometimes treat lupus when other treatments haven’t worked.
    • Repository corticotropin injection. A medicine called H.P. Acthar Gel may help your body make its own steroid hormones like cortisol to fight inflammation.

    Side effects of other medications

    Common side effects of anticoagulants include bloating, diarrhea, upset stomach, vomiting, and loss of appetite. You may rarely have bruising, a skin rash, a sore throat, back pain, or yellow skin and eyes (jaundice).

    Monoclonal antibodies might cause problems like headache, nausea, hives, or blood pressure changes. These can usually go away over time.

    Acthar Gel may cause swelling, changes in blood pressure or glucose tolerance, mood changes, stronger appetite, or weight gain.

    Complementary treatments for Lupus can be supportive and aimed at reducing stress, improving the immune system and reducing inflammation and pain. They may include:

    Talk to your doctor or pharmacist before trying any alternative or complementary treatments for lupus. Also ask your pharmacist to run a drug interaction on their “system” to see if there are any potential or real interactions.

    Lifestyle Changes

    A healthy lifestyle will help you feel better and prevent flares. It can also help prevent problems linked to lupus, like kidney diseaseheart attack, and stroke.

    Try these tips:

    For Discoid lupus some tips to help cope with the disease include but may not be limited to:

    • Staying out of the sun in the middle of the day (from 10 AM to 4 PM), when the sun's light is strongest
    • Stay under a sun umbrella, tree, or other shady spot
    • Wear sunscreen – Put sunscreen on all parts of the body that are not covered by clothes. Then reapply sunscreen every 2 to 3 hours, or after you sweat or swim. It's important to choose a sunscreen that:
    • Has an SPF of 30 or greater – SPF is a number that tells you how well a sunscreen protects the skin from UV light.
    • Protects against 2 types of UV light, called "UVA" and "UVB." (Sunscreens that offer both UVA and UVB protection are sometimes called "broad spectrum.")
    • Has not expired or is not more than 3 years old
    • Wear a wide-brimmed hat, long-sleeved shirt, and long pants
    • Do not use tanning beds
    • If you smoke, it's a good idea to quit. Discoid lupus seems to be more severe in people who smoke. Also, smoking seems to make certain medicines for discoid lupus less effective.
    If you are bothered by the way discoid lupus looks on your skin, you can use special cosmetic products to make the skin changes less obvious.

     Contributors:

    • Dr. Winsome Beverley Christie, President of the Pharmaceutical Society of Jamaica,
    • Kevar Bennett, Secretary of the Pharmaceutical Society of Jamaica.
    • Brittney Taylor Assistant Secretary of the Pharmaceutical Society of Jamaica,

    References

    Bae SC, Fraser P, Liang M. The epidemiology of systemic lupus erythematosus in populations of African Ancestry. Arthritis & Rheumatism 1998; 41:2091-2099

    Danchenko N , Satia JA, Anthony MS. Epidemiology of systemic lupus erythematosus: a comparison of worldwide disease burden. Lupus 2006; 15:308-18

    Lewis MJ, Jawad AS. The effect of ethnicity and genetic ancestry on epidemiology, clinical features and outcome of systemic lupus erythematosus. Rheumatology 2017; 56:67-77

    Somers EC, Marder W, Cagnoli P et al. Population-based incidence and prevalence of systemic lupus erythematosus: the Michigan Lupus Epidemiology and Surveillance program. Arthritis Rheumatol 2014; 66:369-78

    Symmons DP. Frequency of lupus in people of African origin. Lupus 1995; 4:176-8

    Discoid Lupus

    https://online.lexi.com/lco/action/doc/retrieve/docid/disandproc/3634237?cesid=23AbZOOrhGy&searchUrl=%2Flco%2Fa

     Lupus Treatment

    https://online.lexi.com/lco/action/doc/retrieve/docid/disandproc/4734765?cesid=7oZ8qt5MQEP&searchUrl=%2Flco%2Fa

    Complementary and Alternative (CAM) Treatments of Lupus-LUPUS UK

    Lupus Treatment: Medications and Alternative Treatments (webmd.com)

    https://www.frontiersin.org/articles/10.3389/fimmu.2020.589474/full

    Guan W, Ni Z, Hu Y, Liang W, Ou C, He J, et al. Clinical Characteristics of Coronavirus Disease 2019 in China. New Engl J Med (2020) 382:1708–20. doi: 10.1056/NEJMoa2002032


  • 12 May 2021 11:51 AM | Anonymous
    PHOTO: GARFIELD ANGUS Minister of Health and Wellness, Dr. the Hon. Christopher Tufton, addresses a recent forum in Kingston, to outline Government's support for persons living with lupus.

    HEALTH & WELLNESS MAY 11, 2021 WRITTEN BY: GARFIELD L. ANGUS

    Minister of Health and Wellness, Dr. the Hon. Christopher Tufton, says the Government spent more than $12 million on drugs for lupus patients in the last financial year, and more persons should register and access the support.

    Addressing a virtual forum to observe World Lupus Day on Monday (May 10), Dr. Tufton said more than 900 patients benefited.

    “It was a commitment kept by the Government to improve the outcomes of persons affected by lupus, by providing specialist care and vital drugs free of cost through the public health system, and now a private system subsidised by the National Health Fund,” the Minister added.

    He pointed out that the NHF subsidises more than 120 medications for lupus care, and persons with the disorder can access services at 105 fully operational Drug Serv pharmacies and 49 private/public pharmacies.

    Dr. Tufton said the Government has been playing its part to advance services for the patients, by supporting initiatives that improve the awareness and understanding of the disease.

    “I salute the Lupus Foundation of Jamaica for the work that it has been doing. I implore all Jamaicans to join together to fight lupus and support persons living with the disease,” the Minister said.

    The event was organised by the Lupus Foundation of Jamaica (LFJ), under the theme ‘Unmasking the Many Faces of Lupus’.

    Meanwhile, President of the LFJ, Dr. Désirée Tulloch-Reid, said the best option for persons who are living with the ailment is to control it through treatment and consistent monitoring.

    “We don’t have a ‘cure’… but treatment has come a long way. Now it is possible for most people to achieve control of their disease with the right treatment,” she told the forum.

    Dr. Tulloch-Reid said the “goal” for all those persons affected is to “gain control of the situation, and maintain control”.

    The forum heard from many persons who are living with the disease, medical experts and other persons, who shared their experience with the ailment.

    Lupus attacks tissues in various parts of the body, leading to tissue damage and illness. While the ailment affects predominantly young women, both genders can be affected by the illness, including children.




  • 4 May 2021 11:45 AM | Anonymous

    CALLING ALL LUPUS WARRIORS

    SEND US YOUR PHOTO OF YOUR FACE and help us build a COLLAGE as we showcase the MANY FACES OF LUPUS and help raise awareness about lupus.  We need at least 100 faces!  We can do it!                           

    Just email or whatsapp your pic to info@lupusfoundationjamaica.org or 8767783892

    or tag us on our social media pages Facebook: https://www.facebook.com/Lupusfoundationjamaica/

    Instagram: https://www.instagram.com/lupusfoundationja/  (make sure to like, follow and share).  

    Submissions needed by Wednesday May 5, 2021.

     

    This is just an example of what we would like to create

    This image is courtesy of Lupus Canada

     
     

    7 Barbados Avenue
    Kingston 5, Jamaica, W.I.
    876-754-8458

    Helpline
    876-778-3892 (Voice/Text/Whatsapp)

    Email: info@lupusfoundationjamaica.org


  • 28 Apr 2021 2:11 PM | Anonymous

    Scores of Jamaicans continue to suffer the debilitating effects of Lupus. The Lupus Foundation continues to support the fight against Lupus through its education programmes, advocacy and support to persons to living with the disease. 

    On May 10, LFJ will be joining in with lupus groups across the world as we observe World Lupus Day 2021 under the theme MAKE LUPUS VISIBLE.  We will be promoting awareness of lupus through the help of community and media partners and on our social media platforms, while seeking to raise funds to continue the work and support our Lupus Warriors.  

    LET US ONCE AGAIN UNITE IN THE FIGHT

    Help us MAKE LUPUS VISIBLE by participating in one our many activities across the Island leading up to and on World Lupus Day (WLD):


    1. PRINT & POSTER CAMPAIGN: Providing posters and literature for Educational displays in partnership with

      1. branches of Jamaica Library Service across the island – including Clarendon, St Elizabeth and Westmoreland Parish Libraries

      2. Lupus Treatment Centres and major Hospitals across the Island

      3. Workplaces, schools, churches, health Centres on request

      4. CALL OR EMAIL US BY APRIL 30, 2021 for materials to make your own display at work or church!


    1. RADIO AND TELEVISION INTERVIEWS AND FEATURES facilitated by our Media partners leading up to May 10

      1. TUNE IN AND INVITE A FRIEND TO LISTEN


    1. PUT ON PURPLE AND SUPPORT OUR WARRIORS:   We are encouraging all Jamaicans to wear something purple on World Lupus Day Monday May 10 in solidarity with the cause and with those affected by lupus

      1. Drop in and pick up a purple ribbons at LFJ Lupus Learning Centre, – 7 Barbados Avenue

      2. Purchase T-shirts, wrist bands or other merchandise from our office or Online Store


    1. SOCIAL MEDIA CAMPAIGN:  Leveraging social media platforms Facebook, Instagram and YouTube with messages, videos and promoting lupus awareness

      1. MAKE SURE to like, follow, subscribe (with notifications) our social media pages to receive and share our Awareness Messages, videos and images! 

      2. TAG US on pics and videos showing what you are doing to MAKE LUPUS VISIBLE in your neighbourhood or Social Media space.  #WorldLupusDay  #LupusFoundationJA


    1. FUNDRAISING DRIVE: We are on a drive to raise funds to continue ongoing and new programmes and meet increasing demand for services.  You can help!

      1. Suggest your company as a sponsor and join in as one of Our Caring Companies

      2. Make a donation of any size or encourage your family/friends

      3. Take a donation can to your work place

      4. Share our Sharable posts with links to our Donation page with family and friends

      5. Do your own Crowd-Funding campaign


    1. VIRTUAL WORLD LUPUS DAY EVENT:  Monday May 10, 2021 at 7 pm:

      1. Make Lupus Visible: Unmasking the Many Faces of Lupus

      2. Free online virtual event hosted by media practitioner Roxene Nickle of THE EDGE 105 FM

      3. Streaming live on Facebook Live and Youtube

      4. Register today at www.lupusfoundationjamaica.org



  • 25 Apr 2021 3:20 PM | Anonymous

    On May 10, 2021, LFJ will join in with lupus groups across the world as we observe World Lupus Day 2021 under the theme MAKE LUPUS VISIBLE.  We will be leveraging community and media partners, the power of social media  as well as staging of a special free online event Unmasking The Many Faces of Lupus.  

    You can help the effort by sharing your story as a person living with lupus:

    Just record a short video/videos, 30 seconds or less for each one or more of the following topics:

    • Introduce yourself, eg,  "I am -------, I am ------- years old, and I have lupus"
    • When/how were you diagnosed?
    • How are you doing now?  What is your strategy to survive or thrive with lupus?
    • How long have you been a member of the LFJ? Would you encourage other lupus warriors to join, and why?

    You can make your own recording with your camera or smartphone Send in your recording to info@lupusfoundationajamaica.org by April 30, 2021.

    Having difficulty?  We can help you!  Just visit the Lupus Foundation Learning Centre (7 Barbados Ave) on Monday April 26, 2021 or Thursday April 29 between 11:00 am and 2:00 pm and one of our volunteers can assist you with the recording.

    Disclaimer: Your video is not guaranteed to be selected for the programme due to limited time slots available. Your video might be edited to tighten your story.  By submitting your video, you have expressly given the Lupus Foundation Jamaica the permission to use your recording for current and future promotions and awareness events conducted by the Lupus Foundation Jamaica.

    TIPS FOR RECORDING AT HOME:

    If you are doing your own recording, please note the following tips for a great video:

    Instructions on recording video with a smartphone. at home without any equipment

    WATCH THIS VIDEO

    https://www.youtube.com/watch?v=Y0URmjXWmQA

    Other tips

    Other Instructions

    1. Do not do a selfie holding your camera with your hand. The footage can often be shaky and jarring to the viewer's eyes.

    2. Film in a quiet place away from loud noises like traffic, dogs barking or people shouting.

    3. Ensure your face is lit by turning on a lamp and pointing it toward your face or filming facing a window.

    4. Do not film yourself far away from the camera. You will sound better the closer you are to the video.

    5. Read the questions and familiarize yourself with your answers before recording.

    6. Ensure the video is in focus so we can see you clearly.

    7. Lastly, relax, be yourself and speak from the heart.



  • 1 Apr 2021 10:27 AM | Anonymous

     APRIL 2021 NEWSLETTER

    LFJ NEWS

    Click Here to View

7 Barbados Avenue
Kingston 5, Jamaica, W.I.
876-754-8458

Helpline
876-778-3892 (Voice/Text/Whatsapp)

Email: info@lupusfoundationjamaica.org


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